Tag: ALS

Hundreds ‘Walk to Defeat ALS’ at UNF to raise money for research, help find a cure
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Hundreds ‘Walk to Defeat ALS’ at UNF to raise money for research, help find a cure

JACKSONVILLE, Fla. – Hundreds of people took part in the annual “Walk to Defeat ALS” on the campus of the University of North Florida.It was an effort to raise money for research and to help find a cure for the disorder that affects how the nerves and muscles work.“This disease is an ugly disease. But I am not going to let it define me,” said Max Snyder, who was diagnosed with ALS in 2022.One of our colleagues had that disease. Beloved executive producer, Sharon Sigel-Cohen, battled it and died in 2020. Several of our News4JAX co-workers walk in this event in Sharon’s honor.RELATED | ‘Sharon’s Songbirds’ will ‘Walk to Defeat ALS’ and you can help us!Snyder and Bob Cooney said they are brothers for life, even though they just met Saturday morning. Both men battle ALS.“I lost feeling in my ...
Fighting the good fight against ALS
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Fighting the good fight against ALS

Fighting the good fight against ALS - CBS News Watch CBS News Brian Wallach has beaten the odds after being diagnosed with ALS (amyotrophic lateral sclerosis, or Lou Gehrig's disease). Given six months to live, remarkably he has survived six years. During that time, he and his wife Sandra have lobbied for funds for promising drugs and treatments. Two years after first meeting Wallach in 2021, correspondent Lee Cowan revisits with him to find out how he and his grassroots organization I Am ALS helped pass a law (Act for ALS) funding more than $100 million a year for five years for various ALS initiatives, and wh...
Fighting the good fight against ALS
Health

Fighting the good fight against ALS

The first time "Sunday Morning" met Brian Wallach, in 2021, we feared it might be our last. He was already four years into a diagnosis of amyotrophic lateral sclerosis (or ALS), a rare and incurable disease that on average takes patients in 2-5 years.But we're pleased to say this past Summer Brian and his wife, Sandra Abrevaya, invited us back to their home outside Chicago. With their two daughters, now six and eight, the family just celebrated their sixth Thanksgiving since the diagnosis. Only about 20% of ALS patients ever achieve that kind of longevity.Communicating through Sandra, Brian said, "I have been progressing, but the good news is I'm still here." Cowan asked, "How much has that extra time meant to both of you?""It's everything," Brian repli...
FDA panel overwhelmingly votes against experimental ALS treatment pushed by patients
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FDA panel overwhelmingly votes against experimental ALS treatment pushed by patients

Federal health advisers voted overwhelmingly against an experimental treatment for Lou Gehrig's disease at a Wednesday meeting prompted by years of patient efforts seeking access to the unproven therapy.The panel of Food and Drug Administration experts voted 17-1 that drugmaker Brainstorm's stem cell-based treatment has not been shown effective for patients with the fatal, muscle-wasting disease known as ALS, or amyotrophic lateral sclerosis. One panel member abstained from voting.While the FDA is not bound by the vote, it largely aligns with the agency's own strikingly negative review released earlier this week, in which staff scientists described Brainstorm's application as "scientifically incomplete" and "grossly deficient." What were the FDA panel's...
Artificial intelligence helps ALS patients preserve their voices
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Artificial intelligence helps ALS patients preserve their voices

Artificial intelligence helps ALS patients preserve their voices - CBS News Watch CBS News With the help of artificial intelligence, ALS patients are able to preserve their ability to speak. Dr. Jon LaPook has more. Be the first to know Get browser notifications for breaking news, live events, and exclusive reporting. Not Now Turn On